A HEREFORDSHIRE couple have told of their struggle after their young son was diagnosed with a terminal brain tumour.

Logan Kelly, from Hereford, was living the life of a normal 10-year-old boy earlier this year when he developed a limp.

What was initially thought to be a hip problem was in fact Diffuse Midline Glioma (DIPG).

This was diagnosed after he lost all control of the right side of his body while swimming.


Diffuse Midline Glioma is an aggressive, malignant brain tumour, most often occurring in children.

It infiltrates healthy brain tissue, spreading between and around surrounding brain cells.

Logan's parents Lauren and Matt said their world was "flipped upside down overnight", following the news.

They said: "There are no words to explain the feeling when you are told that you are going to lose your child."

"We are struggling to come to terms with a future that we have no control over, a future that has been stolen from us before it has even had a chance to exist."

They are looking to spread awareness of the disease and implore parents to push for a second opinion if they believe something is not right.

"As a parent you know your child best, if you take your child to the doctor and it still doesn't feel right please push and demand further tests and more opinions."

The couple are determined to fulfil Logan's dreams with what little time they have left with him, and to give him an "incredible" Christmas.


They have set up a GoFundMe page to not only create the best memories for Logan but to help reduce the burden of the added costs that come with not being able to work.

Lauren and Matt are said to have been blown away by the support shown since they put up the page last week.

They said: "We truly don't know how to express how grateful and thankful we are for the unbelievable support that we have received through donations and kind gestures over the past week.

"We would like to thank everyone who visits our page and also to those who donate, from our family to yours, thank you."

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