A HEREFORDSHIRE MUM of a young baby who was due to have a brain operation has provided an update.

Sydney Burton was born with a porencephalic cyst.

It is a very rare disorder that affects your central nervous system, which often happens before or soon after a baby is born.

Children with this condition develop fluid-filled cavities, or cysts, on their brain.


Sydney, aged 17 weeks, was born with a small growth on her brain, but in her short life so far she has suffered multiple seizures and the cyst has doubled in size.

She was due to have an operation last week at Birmingham Children's Hospital but unfortunately, due to emergencies at the hospital, it was unable to take place.

Sydney's mum Donna Burton, from Leominster, said that she broke down on hearing that there would be a delay.

Mrs Burton said: "The hospital couldn't have been more apologetic and we completely understand that these things happen and can't be helped.


"We had psyched ourselves up for the day and emotionally prepared ourselves for it to be last week and just started crying when we heard that they couldn't fit us in.

Birmingham Children's Hospital have said that the operation will be rescheduled for a day in the next three weeks.

Mrs Burton said: "The waiting is worse, We just want to get the operation done and then we will know more about how we move forward."

The family has set up a GoFundMe page to help the family try and cover the costs of practical day to day things to help care for their daughter during and after her operation.

Ms Burton said: "We don't know what lies in the future but we do know its going to be a long recovery road ahead for Sydney and for the whole family.