A LEDBURY mother whose son was born with a rare genetic condition is looking for somene with a similar story.

Melissa Morris wants two things in this world: to bring her baby home and meet someone who shares her experiences.

The 24-year-old and her son John-Paul have practically lived in hospital since he was born with a chromosome disorder in early May.

John-Paul was diagnosed with 1p36 Deletion Syndrome, causing hearing loss, brain seizures and heart and sight problems.

Doctors thought he wouldn’t make it before a life-saving operation in Birmingham Children’s Hospital gave him a chance.

Miss Morris said John-Paul’s condition varied daily but is hopeful that her son can eventually come home to a regular routine.

She is looking in the meantime to confide and share experiences with a Herefordshire parent whose child has the same condition.

But Miss Morris knows she faces a struggle, as just one in 5,000 babies are born with the condition worldwide every year.

“I’ve had a few people from Birmingham and the West Midlands get in touch but no-one from the county,” said Miss Morris.

“It’s a big ask because it’s very rare but it would be nice to have someone close to meet and share stories with.”

The mother and child have spent four weeks apiece in Birmingham and Hereford hospitals and treatment is ongoing.

Miss Morris claims it’s a miracle that John-Paul is simply alive and has nothing but praise for staff at both hospitals.

“Hereford have been amazing and if I could take home all the staff with me I would,” said Miss Morris.

“When we first arrived in Birmingham it was their gut feeling he had a condition that was shutting down his body.

“They really prepared us for the fact he wasn’t going to come home so I was delighted when I got the diagnosis.”

Parents with a similar experience can call 07814 505778.